DVT (Deep Vein Thrombosis)

anyway, endurance athlete = sedendary couch potato, i'm happy

"Get faster or die trying"

• 50 cent(uries)
  

peers over stomach at feet

watevs

i'm just going to stick at 3mg warf regardless of inr, it feels right, when i cut mesen shaving it doesn't take a worrying amount of time before clotting, and my sedentary lifestyle is comfortable

Who was treating you? NHS? What did they say when you told them you'd manage yourself?
I was having to take 8-9-10mg of Warfarin to get my blood into their 2-2.5 range though. 3mg doesn't make a dent in my alcohol-sludge blood.

the local yokel nhs vet/dr; they kept telling me to vary the dosage, quite dramatically imho (up to 8), but i just nodded and took 5 max, then when it went haywire during the preceding 3 months i was relieved i hadn't slavishly taken their direction... so 3 it is

if it all goes tits up then either i peg out, or more likely hopsitalised, and as i travel around the uk a fair bit i make sure my anticoagulant card is top of the wallet and on phone lock screen

it may be that the residual alcohol level in your bloodstream is negating a lot of effectiveness of warf? not that you're a 'twenny pee for a swallae' lush or anyfink

It doesn't work that way though, alcohol increases INR, so clotting is reduced further, ie. being a pisshead should've been helping the Warfarin.

I stopped Warf back in March after the 3 months they said for the first one. This second clot could be a complication from damage from the first one or it could just be that I'm genetically predisposed to clotting and now that it has shown up they need to test for:

Factor V Leiden
Protein S deficiency
Protein C deficiency
Prothrombin Factor II

Or it could be other shit - wikipedia says some cancers can cause it. Yay, sweet, sweet death, take me away.. or um...

Acquired
Older age
Major surgery and orthopedic surgery[19]
Cancers, especially of the bone, ovary, brain, pancreas, and lymphomas[12]
Inactivity and immobilization, as with orthopedic casts,[19] sitting, travel, bed rest, and hospitalization[8]
Pregnancy and the postpartum period[8][22]
Antiphospholipid syndrome[23]
Trauma,[8] minor leg injury,[16] and lower limb amputation[12]
Previous VTE[24]
Combined oral contraceptives[12]
Hormonal replacement therapy[19]
Central venous catheters[25]
Inflammatory diseases[10][26]/some autoimmune diseases[27]
Nephrotic syndrome[11]
Obesity[19]
Infection[11][26]
HIV[11]
Polycythemia vera[19]
Chemotherapy[9]
Intravenous drug use[28][29]
Inherited
Antithrombin deficiency[8]
Protein C deficiency[8]
Protein S deficiency (type I)[11]
Factor V Leiden[e]
Prothrombin G20210A
Dysfibrinogenemia[19]
Non-O blood type
Mixed
Low free protein S[11]
Activated protein C resistance[11]
High factor VIII levels[31]
Hyperhomocysteinemia[8]
High fibrinogen levels[8]
High factor IX levels[8]
High factor XI levels[8]

:)

Do you take aspirin?

https://www.ncbi.nlm.nih.gov/pubmed/23121403

"Patients who have had a first episode of unprovoked venous thromboembolism have a high risk of recurrence after anticoagulants are discontinued. Aspirin may be effective in preventing a recurrence of venous thromboembolism."

Well, thanks for fucking mentioning that doctors...

"It also sounds like there are some different side affects with Xarelto that you may not get with Coumadin. The 2 big ones for me have been fatigue and muscle/joint pain."

This sounds like a reason to stick with warfarin/coumdain rather than going to Rivaroxaban. I get quite enough self-induced fatigue and muscle pain thanks very much.

no i fucken don't

just speed and pills

Aspirin is a blood thinner (antiplatelet not anticoag), not to be taken with other thinners unless okayed by a doc that knows your history and what you're taking.

that's what my vet said

but then he always insists on a rectal examination every time i see him..

RG - Hi doc, got an ear infection

Doc - drop yer trews and brace yersen

RG - but it's me ea....nnnggggghhhh

damn if he didn't sort that ear out, mind

"after anticoagulants are discontinued. Aspirin may be effective in preventing a recurrence of venous thromboembolism."

So, once again, why did they fail to mention this? I find it fucking annoying finding out more about my illness through a lunchtime google than a bunch of people who work with these illnesses every day seem to provide.

go back to school, train as a medic, specialise in endurance athlete circulatory problems, enjoy fame and fortune

may

That, probably.

"In this study, aspirin, as compared with placebo, did not significantly reduce the rate of recurrence of venous thromboembolism but resulted in a significant reduction in the rate of major vascular events, with improved net clinical benefit. These results substantiate earlier evidence of a therapeutic benefit of aspirin when it is given to patients after initial anticoagulant therapy for a first episode of unprovoked venous thromboembolism."

I spent an unhealthy amount of time reading up on DVT online after suffering mine, I couldn't find anything that robustly gave an opinion on aspirin (there were limitations with all the studies). From what I understand, the other potential complications from medium- to long-term use of aspirin after a vascular could outweigh the slightly reduced risk of vascular "events".

I've had the Anticoagulation clinic at St George's hospital recommended if you can get a referral.

Just stumbled across this thread, amazing. This forum has everything covered! Always fun to see honest accounts of compliance @hippy (I'm a doctor, though not very good at dvt, never managed to get interested in coagulation). Not that there's anything fun in you guys getting dvt obviously!

Well, I did everything by the book last time and it got me nowhere so I'll be doing my own research and hassle them for proper resolutions from now on. I've got sore abs now because of all the injections I guess (I certainly haven't been doing situps!) and a 24hr to race in a fortnight so that's gonna fuck up everything anyway.

a Dr!

Right then @russmeyer, got ganglion cysts on finger pads, just stab 'em with a scalpel and press the fluid out, easy enough? possible finger pulley severance if i get it wrong? sepsis? death? no, i won't be that lucky, probably end up with a gangrenous claw...

Haha, I'm not going to give stupid advice over internet. Go see an actual dr... But @hippy it's always a good idea to read up on things and hassle them about it. Hope you get well and don't have to go through it again after this. And good luck with the race!

Update after my hospital visit today.

Low iron levels are normally an indicator of an underlying problem. What did your quack say about that?

(Mine were the first indicator on the step to being diagnosed as coeliac).

Nothing much. They're waiting on the full blood profile results to come back which won't be for 6-8 weeks. It's not the first time I've been found with low iron though so I'm not getting too worried about it. I will definitely be using it as an excuse to eat more steak and burgers though :)

"Iron-deficiency anemia occurs because of a lack of the mineral iron in the body. Bone marrow in the center of the bone needs iron to make hemoglobin, the part of the red blood cell that transports oxygen to the body's organs. Without adequate iron, the body cannot produce enough hemoglobin for red blood cells. The result is iron-deficiency anemia. This type of anemia can be caused by:"

blah blah blah...
"Endurance training"
"and clotting disorders"

Or maybe I have my period?