Most recent activity
-
That's a very interesting Ted talk and I agree with you 100%. We need big charities to influence government, and we need dementia and disability to be better understood in society. Small social enterprises play their part but only on their patch. Food for thought for me in running a small organisation, thankyou.
But it still feels unethical to broadcast a campaign like this. I am not aware of any large charity that has taken a stance to terrify those it exists to support. Those who may be worried they have dementia, (and there is a whole lot of clinical experience and research around living with the risk of an inherited dementia which involves dealing with the existential fear of getting what their parent, sister, brother has endured). It is powerful marketing, but very damaging when so much progress has been made in tackling the stigma attached to dementia. To my knowledge cancer has never been portrayed in this way? And the stigma of cancer is now far less with advances in treatment and nutritional advice. The guy says people need fun, love, and a safe place
-
pullingteth - stacked Against you (5)
https://www.lfgss.com/comments/17547932/
umop3pisdn (4)
https://www.lfgss.com/comments/17547949/
moorhen ()
https://www.lfgss.com/comments/17548358/
RonnieOatmilk ()
https://www.lfgss.com/comments/17549168/
mi7rennie - Look carefully, the humans are stacked..... (1)
https://www.lfgss.com/comments/17549193/
iamlono ()
https://www.lfgss.com/comments/17549741/
moocher ()
https://www.lfgss.com/comments/17549745/
eskay ()
https://www.lfgss.com/comments/17549746/
Ewan111 - Sea stacked ()
https://www.lfgss.com/comments/17549931/
WillMelling (6)
https://www.lfgss.com/comments/17550059/
luke572 - stacked humans ()
https://www.lfgss.com/comments/17550239/ -
Dementia UK is a fantastic organisation. Their new podcasts sharing the multiple views of people affected by dementia, enabled by Admiral Nurses who are specialists in working with carers of relatives with dementia.
-
That is sad to hear. Personally I think the bigger a charity becomes, the more this happens. I guess everyone needs a job ...
-
I was part of a global meeting discussing this, so tge subject will never be dropped. Awareness of what it is to experience and live with the daily challenges of dementia in all it's forms is so important, and to gradually chip away at the stereotype that is commonplace. Community spaces, public buildings, hotels etc all need to be far more disability aware in their design, as do much of the general public. Dementia has a beginning, a middle and an end, can continue for decades and throughout the person affected and their families must manage. The search for a cure is seen as the answer, but we already know that nutrition and lifestyle play a big part in its development. More attention to prevention might save the crumbling NHS. IMO. But I do understand I too live in my own bubble, as does the AS, so it is interesting to hear everyone's views as although cycling connects us, LFGSS is a very diverse community
-
This from the Scottish government is more helpful I think. See the article here: https://www.gov.scot/news/new-rethink-dementia-campaign/
I don't deny that loss is bereavement, and that living bereavement is a thing. But, as a clinician, and I believe you are a doctor? it feels to me irresponsible. In this day and age I would like to think we have moved on, and wouldn't describe a human being as dead, and will continue to die again and again. Terrifying to see all over the TV and social media, a happy place for people living with dementia.
I get everyone wants to do their job well, and fundraisers are fundraisers, and they have met their goal for the AS. And yes they are more focused on raising awareness and funding research projects, so important, but they still use people with dementia to sell their brand. Many will no longer do it. And Maxine Linell who has Alzheimers started a petition which thousands of people signed. The advisory board of families for the AS were only consulted on the finished product and asked them not to release it.
Are you aware of all the people with dementia conducting research, and speaking at conferences, and engaged in peer support .. The DEEP network?
https://www.dementiavoices.org.uk/
My organisation enables people with dementia to cycle, and connects people with activities to promote brain health. Neuroplasticity is a thing too, alongside medication for those who can tolerate it.
moocher ()
https://www.lfgss.com/comments/17598817/
WillMelling ()
https://www.lfgss.com/comments/17598831/
Alf0nse ()
https://www.lfgss.com/comments/17598857/
eskay ()
https://www.lfgss.com/comments/17598958/
caveatgez (1)
https://www.lfgss.com/comments/17598988/
skydancer ()
https://www.lfgss.com/comments/17599139/
iamlono (1)
https://www.lfgss.com/comments/17599166/
umop3pisdn ()
https://www.lfgss.com/comments/17599212/
Ewan111 ()
https://www.lfgss.com/comments/17599217/
moorhen ()
https://www.lfgss.com/comments/17599223/