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But if it cuts through with potentail donors then...
That I assume is the risk / reward calculation you referred to.
While it has clearly pissed of a large section of people living with dementia, and AS seem not to have really engaged in the discussion with these people, seems they consider raising money for research of a cure far outweighing the feelings of people and famlies.
Another area they seem weak in is preventative intervention promotion, and interventions that improve cognitive health for people with dementia.
If they raised similar sums of money for these things that improve people's lives now they'd be doing do much more good
skydancer-
Another area they seem weak in is preventative intervention promotion, and interventions that improve cognitive health for people with dementia.
To be fair to them, in my experience, there was actually a lot of resources that went in to this. From my specific perspective in digital marketing, a good proportion of our paid social advertising was not directed at income generation but at this sort of promotion/information dissemination (though of course, there's also a halo effect there, hard to quantify but of at least some brand recognition/marketing value)
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Another area they seem weak in is preventative intervention promotion, and interventions that improve cognitive health for people with dementia.
I am looking for info about this very subject. It's like I don't have the tools to even begin to talk to a parent about getting some help, who is a prime candidate for early intervention (some concerning events recently that, as a carer for another person who is seriously ill, could be disastrous if they worsen) ... my other birth parent is way beyong this stage with dementia now.
E11_FTW
Skülly
I completely agree that the 'dying again and again' messaging won't chime with most people affected by Alzheimer's or their families/carers. But if it cuts through with potentail donors then...
The comms and fundraising functions and the information/support/coalface functions of a large charity will often be separated by sufficient work siloes/layers of bureaucracy that the former can put out a campaign with messaging that would dismay the latter without being subject to checks and balances.
There are, of course, documented policies and other lip-service to the idea of reflecting real experiences (AS had an explicit policy of putting the 'voice of the client' into every meeting and work output, as do many other charities I've worked for), but at the end of the day income generation will often come first.