• From what I can tell there's an awful lot of cross over with ME, so if there's a silver lining to this all, maybe it'll be more effective treatments for that from this.

  • So my mums struggled my whole life with ME - 40 years. Doctors (medical profession in general) dont know what to do with ME, half of them treat sufferers like is make believe and the few that care have no resources. She believes that it was caused by the family home being treated for woodworm and having no option but to be in the house immediately after. If were talking damage to the immune system & extreme fatigue levels then yes there are obvious similarities although hers and many stories ive heard of ME sufferers seem to stem from one form or another of poisoning be it chemicals from crop spraying or certain materials used historically in dental fillings etc shes spent so long trying to be understood that far from welcoming the association to long covid shes actually frustrated by it. Whilst i understand what you mean and agree in hoping it leads to research helping both parties, it could potentially belittle an ME sufferer to assume they are similar things.

  • hoping it leads to research helping both parties

    This was the main thing I was getting at, but I don't think the similarities belittled pre covid ME/CFS sufferers. Although I do empathise with the frustration of suffering from something for 40 years and having it dismissed or belittled, for it to only start getting recognised relatively recently and then a load of people possibly getting it at once. When my wife was"only" suffering with long covid before the intracranial hypertension kicked in she was essentially diagnosed with ME and pointed towards the obviously lacking ME resources. I think I read that pre covid about 3/4 cases of ME are thought to have been triggered by some kind of viral infection and an immune system over response to it, so it's not a huge leap to consider they may well be the same, there seems to be quite a large spectrum of severity and symptoms and possible causes already.

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