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Stonehedge

Why are people keen to opt out? Centralised health records for research is an incredibly positive thing for a country with such poor cancer and other health outcomes (compared to a lot of EU nations).

Is the concern that some time down the road this data would be sold out of the NHS or used for insurance purposes?

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crossedthread in reply to @Stonehedge

Somewhere in a Venn between totally trustworthy politicians currently at the helm and complete faith in database security of those same commissioning parties for me.
Ask me to opt-in and what my options to share are, happy to consider. Opt me in without asking me, fuck right off.

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Stonehedge in reply to @crossedthread

Its as if the NHS doesn't learn its lessons. And here we are yet again, about to botch a truly amazing opportunity for improving healthcare in the UK because the necessary communications, trust and protections are not in place. Its maddening.

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