-
• #77
Sweet potato is fine, I just need to get used to it. Carbs are fine, it's just the percentage of my total intake is very small compared to the veg allowance. Brown rice and pasta made from anything other than grain is fine. It's just only allowed to make up 20% max of my daily diet. It adds up very quickly when I have porridge for breakfast - leaves me with no remaining stodge for the rest of the day...
Finding myself filling up on water all days cos can't be arsed with cooking all the time which probably isn't helping either.
Back on the fags for the moment which I'm disappointed about. -
• #78
One thing I have noticed is that i generally feel less itchy all over. This can only be a positive sign...
-
• #80
Not relevant to your most decent post but I use 'simple' bar soap as a body wash and then I use T-Gel on my scalp and my beard, i have found recently combining e45 and T-Gel works quite well for the stuff on my face.
Mine is only really bad when I don't wash for a few days after letting my head get too sweaty, caused by wearing hats!
-
• #81
Stopping using shampoo did it for me. Google 'no poo'
-
• #82
I have had a look, how often do you wash, and what do you wash with? My girlfriend is going to bring me some Baking Soda to try with a few washes. Had it really bad this morning, had to get another shower and really let the T-Gel sit in my hair.
Also going to play around with letting my hair naturally dry apposed to blasting it with the hair dryer. Either that or get a hair dryer that will blow cool air apposed to warm.
-
• #83
Google 'no poo' for better info than I can give but...
Basically you stop using shampoo. You have to do a kind of cold turkey bit for 2 weeks or so to let your hair get its natural oils back and clean out the residue from the shampoo. During this time you just rinse it with water when you want, rinse it with Apple Cider Vinegar with a pinch of baking soda in and then wash with this:
http://www.drbronner.co.uk/green-tea-liquid-soap-1/
You only need a tiny bit of that stuff its strong. I use it on my face too.
If you do the cider vinegar thing you have to put some coconut oil in to re moisturise it.
Now I just wash with Dr Bronner once a week/ when needed and a bit of coconut oil. It's harder if you have long hair as the transition bit can be a bit greasy, I have really short hair so I haven't noticed any difference other than my skin on my face and head is 1000 times better.
-
• #84
Get yourself on Stelara...my missus had Psoriasis terribly. Got on Stelara via the NHS - had to go through a process of failing other treatments first, then got Stelara approved and didn't look back. She came off it so we could have a baby - no problems. She's not had Stelara for over 2yrs now and still no real problems - a couple of minor plaques that go away with a topical steroid. If its bad, get on stelara by hook or by crook.
-
• #85
Bump.
Mines been creeping up on me again. Generally fucks off by this time of year but lingering like a fart on the Central line.
To date I’ve only seen gp and been on topicals(calcitrol and betnovate), time to ask for a referral and try and get on something like Stelara or Otezla? A little research shows these run at around £10k/year so presume the nhs doesn’t dole them out to everyone.
I don’t have massive patches but it’s really starting to bum me out this time around and is fucking with my bodies ability to heal minor cuts and scrapes now.. -
• #86
Haven't read back through the thread yet but my psoriasis started up about seven years ago due to a particularly stressful time in my life. Guttate psoriasis all over, arms, legs, back, chest, the whole shebang.
I went to the doctor and tried various steroid creams and that sort of thing but meanwhile I did plenty of research on diet and found what was supposed to be a guaranteed way to clear it up with a super clean diet. No sugars. No alcohol. No fried greasy foods. It cleared up so quickly it was a bit hard to believe.
Combination of work stress and dietary indulgence meant it came back again maybe three years ago but only as a patch in the middle of my chest with occasional patches on the sides of my nose and around the scalp but I manage it reasonably well by diet, sugar and alcohol are the two worst culprits.
I've started taking cbd oil in the last week and it seems to be really helping but it's too early to say with any certainty.
TL;DR I've had no success with medication. As an ailment which is actually affecting the immune system all the creams will really do is minimise the symptoms. If you can isolate what's causing the stress on your immune system and reduce it it'll make the biggest difference.
Shampoo: Alpecin Anti-Dandruff is the best I've found.
Body scrubs are pretty great too, you're better scrubbing off the build up of skin as often as possible so as not to let it cause sores or lesions.
I made my own with coffee grounds and coconut oil for a while and it was lovely. Just became impractical for me as I travel for work almost every day.
-
• #87
Over the past few decades I've worked my way through all the various treatments, and have been on biologicals (Humira/Etanecept) for nearly a decade. Nothing up to that point had worked reliably for me, and the biologicals have honestly been a bit of a magic bullet. Though they're not entirely risk-free (need bloods taking every 6 months or so, checks for TB, etc.), I've not had any noticeable side-effects in the years I've been taking them, and they keep the psoriasis down to minor and purely cosmetic bits - I occasionally get minor itchiness on my scalp, so I habitually just use tar shampoo. They are expensive, so you'll typically have to work your way through all the other drugs until you reach them as the treatment of last resort.
-
• #88
Compared to the 80s there are so many better treatments available now. Back then they just greased you up like a channel swimmer and hoped for the best.
I’ve been on Humira for 5 years now and it has totally changed my life as it’s the only thing that has truly worked for me.
I do think stopping smoking and reduced drinking has also helped but it’s also true that every case seems to be slightly different.
For beard wearers I’d recommend rubbing protopic ointment or Vaseline into it when still wet.
I also strongly agree with those who suggest not using soap at all.
I’ve had this shitty condition for 39 years now and there is such a better array of treatments available now so do take the time to see a GP if you can and good luck.
-
• #89
I've gone from steroids to UV therapy back down to steroids when i moved to london then up to methotrexate (which worked) then off methotrexate when my dermatologist said if you're going for kids you need to stop. A massive flare up and now I'm lumbered with psoriatic arthritis. Which is now sort of under controlled with benapali (biological) and methotrexate.
I tried diet. That's not worked.UK Dermatologists are very risk averse and will, in my experience, do fuck all.
My US dermatologist had me in on UV therapy after not very long and it cleared it the fuck up. However, UV damage.Can you move somewhere sunny is what I was asked once ...
-
• #90
Soo, diet-wise I’m vegan. Ditching dairy 2yrs ago made a huge difference(large areas on arms compared to a few spots smaller than 5p coin after).
I do still smoke on occasion(fuck knows why) but I don’t drink. I do need to kick the sugar habit tho.I know full well I’m not in as bad a shape as many people out there but I feel over the last year new tattoos have been slower to heal and am getting patches on ankles and feet for the first time.
Only seen gp so far, a bit of casual googling would imply I wouldn’t qualify for many nhs treatments as my coverage is currently below 3%. Personally I’d rather avoid the uv treatments as a lot of anecdotal evidence I’ve read suggests it’s not really worth it.
I’d love to move somewhere sunny but that can wait.
Do gps refer to dermatologists easily enough and if so is there anyone in London who’s name is worth dropping as an expert?(will start researching now)It’s not so bad in the grand scheme of things(aside from the dandruff) but it’s really pissed me off this year and the topicals aren’t really cutting it this time.
-
• #91
I do still smoke on occasion(fuck knows why) but I don’t drink. I do need to kick the sugar habit tho.
These are the two worst culprits in my experience, I've an uncle who has really awful psoriasis and he's an old school, five sugars in his tea, smoking rollies all day sort of character who is more than fond of a feed of beers and whiskey... doing himself absolutely no favours :(
Try and steer clear of the smokes if you can! Be good to yourself also, stress is terrible for flare ups I find.
-
• #92
Does anyone take a spoonful of lecithin a day? Lots of articles to suggest it helps stop new sites forming if nothing more.
Picked up a tub so will give it a whirl. -
• #93
The guys and stthomas clinic is the best in London.
-
• #94
For derm and rheum.
-
• #95
Psoriasis is a disease of inflammation. You're generating an immune response to something. The best way to knock it down is with a biological agent, anti tnf alpha.
After that it's levels of not so good. -
• #96
I’ll freely admit that having a bunch of tattoos done over winter hasn’t helped my situation.. by and large it’s not triggered a reaction on the tattoos themselves tho.
-
• #97
Sugar is the trigger for me
-
• #98
No more Oreos it is then. Gutted.
-
• #99
Agree; also (assuming he's still there) they have the most appropriately-named consultant dermatologist in town, Dr Creamer...
-
• #100
That's brilliant about tattoos. I've been meaning to get mine covered up, but the previous flares and lack of money etc and so on, have been putting me off anything big.
Heroic!
Anyhoo, what about rice? And pasta? Can't you carb load with those starchy bad boys? I digest them easier than spuds, much to the disgust of my Irish ancestry. And what about sweet potatoes? Are they off the menu? Yams?
The missus gets psoriasis on her leg. Always scratting at it. Not sexy. I'll try her on that shampoos and see how we get on!
Good look with the diet, @edmundro mate - hope you fuel up and heal up!