Isolation room on the 2nd Floor of St.georges... again. Exactly 2 weeks in as of starting this post.
I think my previous experience must have been so bad I mentally blocked the important details... or I just don't remember it properly, but long story short the chemo was a breeze. No vomiting, nausea even, appetite through the roof, as I've trained myself to do in these treatment situations. A very slight headache and racing heartrate in the final 2 days before the stem cell injections but nothing major.
Awesome, I thought... perhaps this'll be a bit easier this time as the cancerous masses left are minute this time after the tonsillectomy, radio and previous chemo..
WRONG.
As of Saturday night I started to rapidly develop acute mucositis on all soft tissue from gums, tongue, throat and stomach lining).
In a nutshell- all of that tissue has become ulcerated, bloodied, cracked, swollen and essentially any movement causes the kind of pain is imagine if you tried to drink crushed glass.
I've been fitted with a morphine pump, been okayed for Oromorph too and have codeine and paracetamol as backups but im on 6mg an hour, and its simply not touching the pain.
I've been assured it should start naturally easing off in a few days and be gone by next friday, but this has easily been my worst episode of physical pain ever.
I'm just trying to focus on the fact I've now got through a huge amount of shit in the last 7 months and in 2-3 weeks it could all essentially be over.
No more surgery
No more chemo
Never need radiotherapy again
No stem cell transplants or the depression and stress only an isolation room can achieve.
Just the final test yet to overcome - did the transplant succeed, and will it and my body get along or will they both work their hardest to kill me over the next couple of months.
I should know by Sunday evening if it's worked.. but if it hasn't, that's essentially my last hope used up.
Well here I am, post transplant...
Isolation room on the 2nd Floor of St.georges... again. Exactly 2 weeks in as of starting this post.
I think my previous experience must have been so bad I mentally blocked the important details... or I just don't remember it properly, but long story short the chemo was a breeze. No vomiting, nausea even, appetite through the roof, as I've trained myself to do in these treatment situations. A very slight headache and racing heartrate in the final 2 days before the stem cell injections but nothing major.
Awesome, I thought... perhaps this'll be a bit easier this time as the cancerous masses left are minute this time after the tonsillectomy, radio and previous chemo..
WRONG.
As of Saturday night I started to rapidly develop acute mucositis on all soft tissue from gums, tongue, throat and stomach lining).
In a nutshell- all of that tissue has become ulcerated, bloodied, cracked, swollen and essentially any movement causes the kind of pain is imagine if you tried to drink crushed glass.
I've been fitted with a morphine pump, been okayed for Oromorph too and have codeine and paracetamol as backups but im on 6mg an hour, and its simply not touching the pain.
I've been assured it should start naturally easing off in a few days and be gone by next friday, but this has easily been my worst episode of physical pain ever.
I'm just trying to focus on the fact I've now got through a huge amount of shit in the last 7 months and in 2-3 weeks it could all essentially be over.
No more surgery
No more chemo
Never need radiotherapy again
No stem cell transplants or the depression and stress only an isolation room can achieve.
Just the final test yet to overcome - did the transplant succeed, and will it and my body get along or will they both work their hardest to kill me over the next couple of months.
I should know by Sunday evening if it's worked.. but if it hasn't, that's essentially my last hope used up.
End of the line, man. End of the line